Patients Know Best Avis 

Tarra was very helpful in sorting out the problem I had as I could access my mother’s account, but not mine. The problem was identified and Tarra advised on what I had to do. The problem was rectified, but I then found another problem, which again Was helpfully resolved. The communication throughout was very good and I was informed when it was all set up properly and then further check ins were given and support offered until I was satisfied it was all completed.
It was a really good and helpful service.
Thank you Tarra.

Patients know best had solved the issue for me quite quickly and all is resolved again thanks to the team

They continualy send me appointments that are of the incorrect times mostly at night because for some reason my address was in Brisbane and not in Brighton UK so the appointments are wrong. I have gone into my profile and corrected the address but the appointments are still the wrong times! So there’s not much point in the App!
The service is crap! Is there a solution?

Just been invited to join the app. I’ve refused. A friend who’s worked on it says it’s ripe for misuse. I’ve written to my health board to ask that they deregister me.

Both yesterday and today I submitted an eConsult querying my new medication and I got answers to both queries I had on the same day. What more could you ask for?!

I had problems signing in and reached out to Patients Know Best Support. They were very quick in responding and provided easy to follow steps enabling me to access my info.
A super team in my opinion!!

The department is always welcoming and very professional

From beginning to the end check up, I was treated with the respect that you want- nothing was to much trouble, all was explained. All worries were put to bed.

If you receive an invitation from PatientsKnowBest asking you to sign in for their services, my advice would be not to bother. You will be ripping your hair out in five minutes flat. The registration process doesn’t work and you will keep getting reminders from hospitals you’re not expecting anything from, and you won’t be able to log in to see what you’re being sent! Also doesn’t work the NHS app. Avoid.

Easy to follow the information to add the ‘patients know best’ seems easy to manoeuvre around the site.

I great system for health records with friendly helpful and knowledgeable customer service staff.

I had a problem creating a PKB account. I contacted them and they immediately responded listing possible causes for my problem. From the info they provided, it became clearer as to why I was unable to create an account. I got back to them and they were able to amend/delete certain info, which enabled me to create my account. It was very refreshing to receive such good and timely customer service, so thank you very much Stuart and PKB.

Although it took a while to resolve my problem was dealt with in a satisfactory and professional manner

Provides helpful support and clear guidance to users who are unfamiliar with processes and procedures, ensuring they feel confident and well supported.

I am kept informed of absolutely everything to do with my NHS, Provide and GP Surgery appointments including reports/letters. It is easy to access and navigate. Fantastic information service.

In particular Tarra has sought to follow up my queries and provided some answers for which I am grateful

Tarra was understanding and responsive, helping me to resolve a challenge with seeking information to support an elderly, vulnerable parent.

I was at the end of my tether with trying to log into my account.
This service was really helpful and resolved all my queries efficiently, quickly and with little fuss.
I would really recommend.

Long ago Parliament granted patients access to their health records. However, there were problems with some GP's insisting that access was that the Doctor could read my records to me and that it did not give me the right to actually see the records themselves. That actually happened to me BTW.

Then we got the NHS app which allowed the access we had been promised.

In 2026, in my case, Patients Know Best (PKB) got involved and i have lost access to most of my records.

Apparently i have to now ask my GP surgery to grant each individual part of my record. For example, i have literally just been allowed to see my appointments - does that make sense to you? The "notifications" (that seems to be PKB speak for visits, etc) aren't even in chronological order making everything far more difficult to locate.

Health care professionals used to ask me a question, and i used to load the app and show them. Now i need to remember all the bits of me that are failing - and what they've previously been diagnosed with, etc - provided i have already asked, and have been granted, access to them by my GP. Clearly this is a massive off a cliff leap backwards.

The NHS app used to have sections for test, appointments, medication, etc, each laid-out in chronological order.  I have just logged in to the PKB site and, apart from my name, there's nothing there - no results, no meds, no tests, etc, not laid out in a manner that is usable, just an unsorted list of "notifications" ... although it does remind me that my surgery controls what i can see.

Didn't our elected MP's already grant us the right to see our health records? 

================

My very quick reply to PKB's reply:

I "blame" PKB because before PKB became involved in my NHS data i had access to my NHS data which included test results, notes from NHS workers, including GP's and consultants, etc.
After PKB got involved i have had to specifically ask my GP to see the results of a blood test - for example.
Furthermore, i was only granted access to that one result.
Furthermore, more, more,more, i still have to find out who i now need to ask to beg to have access to my hospital results, etc, as, apparently, "that's not [within] the GP surgeries" purview.
The only good thing about any of this craziness is that no-one has said "computer says no" - YET!
So yes, i do ned help.
HOWEVER ....
WHY should i need that help?
It was working fine and stop that.
Or what we used to call "YOU broke it, YOU fix it".
p.s.
And i've not even mentioned yet another layer of people having access to my NHS records ....
i.e. one more body who could sell my data, or be bought up by, a company such as Palantir.
p.s.
Your line in your reply about how many results YOU release to patients each month shows you clearly don't understand what i'm saying.
Before PKR no-one needed to release the results. Once the requesting person had seen them (yes, with a few exceptions) they were visible to the patient.
My reply to their reply.
Posted on: 2026-09-24

They responded to my query promptly, made a helpful suggestion and I was able to solve my access problem quickly